Dear Mr. Kolberg:

Please put my story on the support page as I would like to hear from someone in a similar position. I am 17 years old and I am waiting for a date to come through for an operation to take my eye out.

My eyesight in my left eye has gradually deteriorated in my left eye since I was born and the doctors tried making me wear an eye patch on my right eye in the hope that It would help my left eye, but it didn't work.

I have colabomas (odd shaped pupils) in both my eyes which does not help my sight. In my left eye I had a cataract removed when I was 13. After the operation I had lots of pain that has not gone away five years later and they do not know why. My specialist thinks That I have blood vessels growing into my cornea which could be a cause.

About two years ago they discovered that my retina had detached but reattaching it would just put me through more pain and not regain any sight in my eye. I have pain now when I concentrate and eye drops will not get rid of the pain so I am having my eye taken out.
 
I am worried that I will regret the operation because my eye does not look bad and my pain comes and goes, although when I have it, it takes a while to go away.  Also I am hoping to go to university and I get the most pain when I concentrate.

I would be very happy to have my story on the support page as I think it really helps to know other people have the same fears. I would love to e-mail anyone.
 

Nina

 

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